Labels are a very powerful thing. Countless scholars, psychologists and writers alike have written lengthy papers on labels and their impacts. As a middle class Caucasian I have felt pretty blessed and have never really felt the impact of a “label”, that is until now. Labels serve many purposes, they help us to define the… Continue reading Labels

It has been a month and a half since I have last blogged partially due to the fact that a.) Carson is doing AMAZING and b.) partly due to not quite being sure how to approach this post. Those close to us know that “Stability, Routine and Consistency” might be an ironic title for this… Continue reading Stability, Routine & Consistency

March was a “quiet” month for our family as we adjusted to a new town, continue to feel comfortable with a new job (for me), a shared home, and a month of no doctors appointments for Carson. Not having to have two or three appointments a week made life feel pretty normal which was a nice adjustment… Continue reading Introducing: Carson the toddler

It’s not very often that I write a new blog post and have nothing to really report regarding developments with all of Carson’s many health challenges. Well everyone I am happy to report that I don’t have anything new to report 🙂 February (and March) have been fairly quiet for us from a health standpoint… Continue reading Normalcy

Hard to believe it but we are more than half way through the first month of 2017. I have to be honest, and I am not entirely sad to see 2016 go. 2017 will be another challenging year for us but a year we are looking at as a time to rebuild, refresh and recharge.… Continue reading 2017- The Year of Rebuilding

Its been a few weeks since I have written and so much has happened (I feel like I say this a lot). For starters, we FINALLY were able to have Carson’s first birthday party! After having to move it because I caught the flu– complete with 104 fever if you can believe it! The day… Continue reading Reflections

A while back I told you all about how Carson has a blood condition where his blood does not coagulate properly. As you know, it took several rounds of calls into the hematologist to actually get the results and when we did finally get the call, it was 2 days before Carson’s heart procedure so… Continue reading Hematology take 2

I am slacking on keeping you all updated but I am so excited to share with everyone some overall good news regarding doctor’s appointments with Carson. A week and a half ago I took Carson to see the GI specialist. When Carson was born it was noted he had some reflux but the spitting up… Continue reading GI & Dr. Amy Roberts

Sine my last blog post Carson finally saw the Endocrinologist. Going into the appointment I was hoping we would see the doctor and she would tell us that this visit was silly and that there is no way she would ever suggest growth hormones for our little boy. Unfortunately, that was not the case.  On… Continue reading Endocrinology & EI

It has been a month since my last blog post and A TON has happened since then. So much so that I keep putting off updating the blog because the prospect of trying to write it all down just seems exhausting. In order to make things easier, I am going to use this post to… Continue reading Updates